嬰兒醫護 今日: 0 | 主題: 79094

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41^#

發表於 04-11-14 12:34 |只看該作者

Re: 我囡囡心臟有事....點算?????

creamsoda, 奀豬mami,
我係用手按住佢心口(等佢訓

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tsznok

侯爵府

積分: 21494

好媽媽勳章

42^#

發表於 04-11-15 08:04 |只看該作者

Re: 我囡囡心臟有事....點算?????

我囝囝今個月24號會番去覆診,好緊張呀...希望醫生會話佢心臟d雜音少左啦!

不過尋日佢傷風感冒帶佢去睇醫生時,我問醫生聽唔聽倒佢心仔d雜音,醫生話:"已經唔係太明顯聽倒。"

做媽媽既,最希望既,都莫過於如此。

§ 為左食得好又健康啲，靚太橫行廚房中… §

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積分: 370

43^#

發表於 04-11-15 09:46 |只看該作者

Re: 我囡囡心臟有事....點算?????

我囡囡有動脈未關閉, 2個月大時照, 有改善, 但上週再照, 即13個月後, 仍未關閉. 醫生話應該不會關, 要做手術.
一是介入導管手術. 由大脾入, 將一樣東西由導管送入該處. 若不成功, 便要做心臟手術, 將血管tie up.
十分膽心. 請問你們對此有什麼資料可提供.
BB 現於QE 覆診, 是否應安排於葛亮洪檢查? 可從何開始?
未知手術是否很危險? 要等?

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積分: 286

44^#

發表於 04-11-16 21:25 |只看該作者

Re: 我囡囡心臟有事....點算?????

15/11, 同囝囝覆完診, 心臟個洞已經發展至 2cm大, 要急切排期做手術, 但急症都要排幾個月, 同埋手術都有風險, 但都要個, 唔做風險更大.
成個覆診過程, 囝囝都在争扎, 醫生唯有比d安眠藥佢食, 都唔知咁細個食咗會唔會有副作用, 無計肉除針板上.
:cry:

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creamsoda

別墅

積分: 877

45^#

發表於 04-11-16 21:29 |只看該作者

Re: 我囡囡心臟有事....點算?????

tsznok,

你仔仔既情況愈來愈好,你都應該安心左唔少啦~放心,冇事既

唉~我奶奶都有話我男友,話我陀住小B時佢比咩我食,食到大既成日頭暈身慶,細既就心臟有事....哈哈,我男友當然唔敢講啦,個時日日都食飯盒同公仔面,一日都未必有2餐~

我都有諗係咪因為咁令到囡囡有病,我自己病冇所謂,但佢有事我真係好心痛,好內疚~我懷住bb初期有食煙,一日一兩支咁,唉..都唔知關唔關事 :cry:
我見到呢度咁多媽媽都話bb既心臟有咁既問題真係覺得好不幸,呢一代營養好咁多,但反而好似仲嚴重過我出世既年代(80年代),我都未聽過有朋友細個時有咁既病....都唔知點解而家既bb會咁~

過去的留不住, 未來的難預測, 守住現在,當下即是~

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creamsoda

別墅

積分: 877

46^#

發表於 04-11-16 22:00 |只看該作者

Re: 我囡囡心臟有事....點算?????

fumiko,

唔好咁擔心,而家醫學咁昌明,醫生一定會揀最好既療法去醫好你既囡囡

手術上既野我都唔識,但呢度有個媽媽既既情況都同你一樣,佢既bb都係係QE覆診,佢都問醫生可唔可以安排bb於葛亮洪檢查,但被醫生拒絕,你都可以試下問醫生既,好似一定要有醫生轉介先可以安排於葛亮洪檢查,你可以打去葛亮洪問下~
我諗一直留你bb係QE覆診係因為佢地既心臟科都好專業,你唔洗擔心呀

過去的留不住, 未來的難預測, 守住現在,當下即是~

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積分: 370

47^#

發表於 04-11-18 08:56 |只看該作者

Re: 我囡囡心臟有事....點算?????

Creamsoda,

Thanks. Through your earlier message, I found the website and tried to contact the healthheart. A social worker get back to me immediately and gave me quite a lot of advice. And he got hold of some consultant to answer me questions too. If any other mother would like to get more information, should try.

Now, I try my best to get as much information as possible so to know better of the future treatment and the risk. And, we keep reminding the baby to do a magic for herself so she does not need to have such a treatment or possible surgery.

Your email did help me a lot.

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積分: 370

48^#

發表於 04-11-18 09:01 |只看該作者

Re: 我囡囡心臟有事....點算?????

Marscayc,

Don't worry. My baby took such sleeping medicine a few times. I checked with the doctor and she said that is not really a sleeping medicine but to only make the baby tire and easily felt asleep. No -ve effect. Last time, my baby took the medicine and won't get to sleep even after 2 hours.

Don't worry. Our babies will be o.k. and be strong to help your baby to get recovery and take good care of him too.

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積分: 286

49^#

發表於 04-11-20 21:39 |只看該作者

Re: 我囡囡心臟有事....點算?????

hello, fumiko
有社工幫你就好啦, 我其實都想知得更多, 但每次問醫生佢都話現階段乜都唔洗做, 只有等. 唔知做手術費要幾多$, 因為我聽同事佢媽媽係葛亮洪做搭橋手術要$48000, 唔知我囝囝做補洞要幾$, 同埋手術後身體是否好弱, 日後不能做體能運動, 唔知有無做咗手術媽媽分享一下,
fumiko, 希望你可以多d分享一下, thanks!

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積分: 370

50^#

發表於 04-11-22 15:17 |只看該作者

Re: 我囡囡心臟有事....點算?????

Marscayc,

The doctor at Q.C said the same thing - it is not urgent to do anything now, wait further and see. And it looks like that it is a very small case.
I heard that all the heart related treatment and surgery are very expensive. Sometimes can be as high as up to Hundred Thousands.

What we can do now, is do more web search and look for more information. And if we ever see a doctor, ask them for more info too.

Hope all the babies will be fine and o.k. and grow up healthily and happily.

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lamtina

積分: 310

51^#

發表於 04-11-25 21:15 |只看該作者

Re: 我囡囡心臟有事....點算?????

Don't worry too much. Like doctor said you can only wait and see. Maybe I share my friend's experience with you Ha...

My friend's son has the same problem....(now he already 10 years old)

1)He got hole between left & right heart chamber after birth.

2)During he is small, he can still playaround, and run...doing exercise. But when you or his teacher discovered that he is not too well (maybe face getting white or even blue)... NEED TO STOP

3)remember!! let him be oridinally children, have right to play, run, and do exercise.. Since exercise can strengthen his muscle..

4)BUT CLOSE MONITORING is a MUST...

Hope getting better and better, since some hole will be getting smaller and smaller while children growing up.....

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