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男爵府

積分: 8313


發表於 05-1-5 22:38 |顯示全部帖子

基督家庭的特別小豆芽會

我們作為父母,知道養育一個小孩,教導他/她,扶植他/她的成長不是一件容易的事,如果我們的孩子是一個在身體或智慧上有缺憾/不足的話,作為父母所面對的衝擊和挑戰就更大了.

或許我們有不足的孩子在自己的教會中是少數,以致有時我們未能向弟兄姊妹分享到我們的難處,又或分享了他們亦未必十分明白.但我們希望在這裡除了可以彼此互相代禱記念外,亦可以分享我們怎樣在基督裡教養他們.


大宅

積分: 1328


發表於 05-1-6 14:19 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear all,
My son was diagnosed as developmental delay in January 2004. My hard life thus begins. I have encountered numerous rude and good professionals during this period of time. As a working mother, I have to hide my sorrow when I go to work. When I come home, I have to train my son intensively. To rear a special child needs endless love, time, effort, wisedom and money. Someone told me that if my child was normal, all the resources that I spent on him would turn him to be a brilliant child. How sad it is! I always ask God why I have this unhappy experience. Now I think that this is a test of human nature as my son has encountered some good and bad people since the diagnosis. God must have His reason for all these arrangements.

Please pray for those moms with special children. May God give them the strength, tolerance and wisedom to rear their children. May God arrange a suitable future for our children.

I feel that Jesus is very close to me every day.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。


別墅

積分: 872


發表於 05-1-7 16:21 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear all,

I have the same problem and feeling as you two. My son was diagnosed as autistic spectrum disorder in June 2003, though he was also regarded as a “high-functioning” autistic boy. Before that, he got different “labels” from different specialist, such as, language development delay, sensory integration disorder, etc. In fact, his development was normal until 2.5year old whenl we found that his language development could not catch up to the level of his age. However, at that time I was going to give birth to the second child and we knew very little about autism.

It broke our hearts when we were told our son was autism. I could still remember when I was pregnant, I prayed everyday to God for giving birth to a normal and healthy kid. I couldn’t help to blame myself and question God. I don’t know why he didn’t listen to my prayer. But my husband said perhaps God thinks we have the ability to bring up children with special needs and His Will be done in his own way.

My daughter is now 2 year 9 months old. She starts to share similar characteristics of her brother. I’m worrying that she may have similar problem.

I am a working mother too. Because of the financial burden (the expenses for my son’s various therapy, training, and treatment are really a huge amount); I can’t give up my job. Apart from working, my husband and I are totally occupied by our kids. We can’t even go to church as both of our kids fear to be with many people. It’s also very difficult to keep them sitting down for morn than 15 minutes.

Life is not easy .We know that more difficulties we’ll need to encounter. As parents of special needed children, we need more understanding, not just sympathy.

May God bless all special needed children and their parents with his great Love and Grace!
但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長


子爵府

積分: 10840


發表於 05-1-7 18:59 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear friends,

As a parent, it is a hard time and feel worry of the child when he is labeled as abnormal.

I have a child in my Sunday class which is labeled as developmental-delay, too. I think he is now 3 years old and he acts like 2. I can see his difference among other children but before the mother told me, I just feel something but don’t aware of his developmental delay as I don’t exactly know his age.

I think his parents, both father & mother is strong and fully devoted to God. They bring their child to our church since his birth till now and enroll in Sunday school when we announced a trial class for nursery children. When I talk to the mother, she doesn't not shows much worries, she just do a mother could to help the child learn. We know each other for quite some times, just lost contact after her marriage which she has moved away for some years.

I see her so strong, I hope you all be strong, too.

Immanuel – God be with you!

「多元社區,和諧並存;你我出手,聾健共融 」


大宅

積分: 1328


發表於 05-1-9 19:49 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Whenever we have sorrow or joy, we must rely on God. Only God can give us total support and understands what we really need. Wealth on earth is nothing important; it can't last long. The Asian tsunami has enlightened me so much --- no matter how intelligent or rich we are, we can't keep them long if God wants to them take away.

Keep on praying and maintain close relation with God.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。


洋房

積分: 423


發表於 05-1-11 12:44 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear all.


"Behold, children are a gift of the LORD,

The fruit of the womb is a reward. "salms127:3

i 'll pray for you all.


洋房

積分: 264


發表於 05-1-14 14:02 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

我之前都聽過一個故事, 有一個天使在派bb, 派到一家人嘅時侯, 就比佢一個唔係咁健全嘅bb個家庭, 咁個家人就問天使, 我無做壞事點解唔比個健康嘅bb我, 天使就同佢講, 呢個bb好須要一家有愛心及耐性的人照顧. 我找了很久, 發覺妳們這一家很有愛心, 一定可以好好照顧這個bb. 子女是上帝赐給我們的, 不論是什麼樣的bb, 希望大家都比心機養育他們吧.
我叫上兒 (是上帝赐給媽媽的女兒) 兒女是耶和華所賜的產業,所懷的胎,是他所給的賞賜。 詩篇127:3


大宅

積分: 1328


發表於 05-1-14 19:08 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

"子女是上帝赐給我們的, 不論是什麼樣的bb, 希望大家都比心機養育他們吧."
Entirely agree.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。


伯爵府

積分: 16163


發表於 05-1-21 01:33 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

大家好
我沒有信仰,在這裡祗是想分享自己的經驗,我是在職媽媽,女兒15個月,她患有唐氏綜合症,在她出世之前,醫生沒有驗出她有此症,我和先生及家人都抱喜悅和順其自然的心態去等待,直到囡囡出世的一刻,我是剖腹生產(半身麻醉),我聽見醫生說"出嚟啦"..."係down's",當時我身體雖冇感覺,但我仍然知道情況有問題,姑娘把bb抱來我身邊,那一刻,我對她好像沒有什麼感覺,我祗想攪清楚,是否攪錯了什麼 ...... 我沒有再見到她,我被推回病房,手術室外的先生和我母親見過女兒,醫生說我們沒事了,兒科醫生會第二天早上見,其實當晚他們回家已經哭了好幾遍 ....
第二日早上兒科醫生來見我,我好想他告訴我bb是正常,但他好清楚說他們懷疑bb患有唐氏,需要抽血檢驗,但是機會很高..... 而且阿囡因黃疸度數比較高,故我們一起留在醫院因我是餵人奶
跟住在醫院裡的數天,我漸漸發覺及明白到自己不應再自顧自傷心,哭了好幾次,事實還是事實,再比我哭一萬次都不能改變她,她就是這樣的一個小人兒,她來了這個新世界,來了我們這個家庭,我們應該好好的養育她帶領她教導她更應該去接受她
現在她給我們一家人的喜悅真是我從前想不到的多,我好想感謝主給我一個這樣的女兒,帶給我們歡樂
我相信這是我的命運,可能上天要給我這個考驗吧
衷心祝福所有小朋友及他們的家人
大家一起努力


大宅

積分: 1328


發表於 05-1-21 11:26 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

I treat my special child as God's beloved gift to me as He knows that He will give me sufficient wisedom and strength to bring him up. My child has renewed my religious belief and life attitude. With God's assistance, I realize that everything can be done.



我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。


男爵府

積分: 8313


發表於 05-1-21 15:22 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

昨晚我和一個媽咪在電話中分享了湊仔的苦與樂,在照顧兒女的過程中的喜與憂,特別是我們要照顧的是一個有特別需要的孩子.
我以前是在中學工作的,故此我明白現在的學制對學生�小朋友的要求是怎樣的一回事,所以我在承承3個月大左右,已經開始籌劃怎樣教育他.,但當醫生告訴我說承承有自閉傾向時,我真的恍然直墜地獄一般......
我都有想--神為甚麼要我的兒子有這樣的問題?但當我再回想神在我的生命中怎樣去牽引我時,我就想起,我愛承承,難道神不愛他嗎?還有誰會比我這個母親更愛我的兒子?就只有我主耶穌基督.

當主幫助我接受兒子有自閉傾向之後,我發現原來一直以來我對兒子所準備的路,只著眼於他應該可以做到的標準,而忽略了去欣賞他學懂每一樣的事情.

就好像我們理智上知道我們每一日所能呼吸的一口氣,都是神的恩典,但我們卻不曾欣賞/感激神使我們可以繼續呼吸.我每一次引導了旨承講'媽媽俾'--'俾旨承'時我都特別開心,因為他現在比起以往肯講多了少少說話.


別墅

積分: 872


發表於 05-2-3 10:02 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

昨天拿到兒子的評估報告,兒子被評為中度自閉,小學要去特殊學校。

非常難過!這意味著過去兩年多的努力都白費了,孩子的情況不但沒有好轉,反而退步。原先評估他是High-functioning,兩年多以來進行各式各樣的training/ therapy, 還希望他能如正常孩子一般的生活,結果卻要失望了。

醫生說小女也有哥哥的問題。一想起孩子們今後的路,總是悲從中來。

主阿!
但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長


男爵府

積分: 8313


發表於 05-2-4 01:42 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

sjmama,

讀到你的分享時,很想與你分享這首詩歌:

上帝聽禱告

誰了解此時我心,正欲言但不語。
誰會知心靈痛楚,像是千斤重枷鎖!
心裡充滿懷疑,世界像是靜止,唯獨你是我一生的靠依,
上帝聽禱告,我在禱告,他的愛永不止息。
我看前路極灰暗,就讓神為我指引,
我軟弱,他知道!靠著神,可改變!
上帝甘心為我犧牲,他定必會聽我禱告。


神了解此時我心,眼淚從未輕看。
從最初一如最初,從來都不變不改!
心裡不用懷疑,冀盼未燼未熄,神會聽聲聲的嘆息!
上帝聽禱告,我在禱告,他的愛永不止息。
我看前路極灰暗,就讓神為我指引,
我軟弱,他擁抱!我未能,他可以!
上帝應許讓你艱辛,最後跨過,他聽禱告。

正如詩歌所說:我軟弱,他擁抱!我未能,他可以!
我不是說你不應該覺得無奈,無力,傷心,難過,而是希望你要將這一切告訴神,因為神比你和你丈夫更愛你的子女,因此你要依靠祂.


別墅

積分: 872


發表於 05-2-4 21:01 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

承承媽媽:

謝謝你百忙中回應!你分享的詩歌,我第一次聽,看見歌詞也令我在辦公室內淚如泉湧。

這兩天心情非常低落,昨天在辦公室內穿著羽絨外套仍然發冷。自從兩年多以前知道孩子的問題後,我們一直積極地面對,努力尋找各種治療方法,只希望幫助孩子在六歲以前,盡可能追到相應的程度。我們也懇切地禱告,請求天父眷顧孩子,幫助孩子克服障礙!

然而孩子的情況卻從正常,變成語言發展遲緩+ADHD,到high-functioning autistic spectrum disorder,到現在的中度自閉,似乎是他的情況越來嚴重。而且女兒也出現問題!你可以想像我的沮喪。我不知道我們是否做錯了甚麼,讓孩子受罪!


如詩歌所說我軟弱,不知該怎麼做,只能以禱告來到神的跟前,求祂帶領。

能請你或其他看到這篇分享的弟兄姊妹代禱嗎?

但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長
該用戶已被刪除

發表於 05-2-5 22:55 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

提示: 作者被禁止或刪除 內容自動屏蔽


複式洋房

積分: 491


發表於 05-2-7 21:31 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

I will pray for you and your family.


大宅

積分: 1328


發表於 05-2-14 14:50 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear sjmama,
Never give up. My boy was similar to your child previously. Please check PM.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。


別墅

積分: 872


發表於 05-2-14 23:04 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear mrsphcheung,
Thank you very much! Pls check pm.


Dear flysss and N&I'sMa,
Thank you very much!

Sincerely,
sjmama
但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長


複式洋房

積分: 491


發表於 05-2-15 20:37 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear sjmama,

Are your 2 kids under any kind of treatment or services now?

Don't give up!


別墅

積分: 614


發表於 05-2-17 16:20 |顯示全部帖子

Re: 基督家庭的特別小豆芽會

Dear sjmama

My son is similar to yours previously. Ever since my son was 3 years old, his kindergarten teacher suspected he was development late. But we only took the teacher was too nervous and my son has only undergone some general and procedural treatment provided by government. My family and me has adopted an avoiding and evasive attitude and always perusaded myself that boy is late in language and growth development and when he grew bigger he would become normal. We are just very lazy and foolish. He didn't like to get along with children, not listen to orders, scream when unhappy....

It was only until my son got on P.1 that we realized there was really a problem. At the mid of term, the teacher said she doubted his social skill and academic performance and might have to repeat P.1.
He was diagnosised as autistic with language and social problem. I feel very very sorry for him for not having done anything for him.

I immediately quit my job and devote most of spare time to attend parent course and stay with him although the financial burden is very heavy. I find this move is very very right. I feel that my son as an autistic child, feels not confident with the outside world and he always fall back to his own world. There must be someone he trusts to lead him step forward. The best one must be MUM.

The psychologist said that for language and social aspects, normal children may e.g. only take 2 to 3 times to learn how to handle a social issue, autistic child my need to take may be 20, 30 or even 100 times to understand and learn to handle the same issue. I must be hundred or thousand more patient than other parents. She told me to give him more chances of facing people instead of hiding him at home.

Being an autistic child parent must have a "thick face" as embarrasment always happen. It takes me almost half a year to find a suitable park with kind and generous parents and children who would like to play with my son (as some parents and children label him as strange guy and stay away from him). God bless!

Now he improves a lot and attending P.2 happily though he is not at the top of the class and have to work hard to catch the others.

I find the whole year the God's love is around me and my family. He guides me every step. My son is God's messenger teaching us what is love in the deeper sense.

God is always on your side. I will pray for you and your son.

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