婦女醫護

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民房

積分: 22


1#
發表於 05-10-25 11:53 |只看該作者

紅班狼瘡

我個friend 最近患了紅班狼瘡,食西藥食到不似人形。請問各位有沒有其他治療方法或食療介紹 ?


伯爵府

積分: 18413

認識瑞士牛牛第一回


2#
發表於 05-10-25 12:53 |只看該作者

Re: 紅班狼瘡

你朋友幾多歲呢, 我個好朋友 10年前食西藥食到肥腫難分.
而家減左藥,好好多啦.

但食開西藥,唔好攪亂佢先.


民房

積分: 22


3#
發表於 05-10-26 00:15 |只看該作者

Re: 紅班狼瘡

約三十吧. 好慘 :-( :-( :-(


洋房

積分: 461


4#
發表於 05-10-26 13:50 |只看該作者

Re: 紅班狼瘡

她的病情應該好重才食都肥, 當她空制病情定左, 就唔需要食那麼多的藥. 叫她自己小心些, 食多有營養的食物, 如: 奶,雞蛋, 芝士, 蕃茄等... (唔好見那麼多太陽, 醫生應該有話的)

有問題要開心見成講出給朋友. 開心的啦!

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複式洋房

積分: 277


5#
發表於 05-11-10 13:01 |只看該作者

Re: 紅班狼瘡

我個aunti都係咁呀..佢又睇過好多奇醫, 但係都係只係減輕 病情囉...佢成日都周身痛..d手指又成日腫晒..連筆都攞唔到呀... :-(


複式洋房

積分: 360


6#
發表於 05-11-10 14:05 |只看該作者

Re: 紅班狼瘡

KKKarina,

I have SLE since 1995, so far so good (touch wood) because my diease is under close monitoring by the hospital (public one).

I guess your friend is in the unstable stage, that's why the doctor prescribed her some "steroid" which will make people fat.

Please ask your friend to avoid sunshine and don't take chinese herbs which carries yellow elements (sorry, just direct translation), e.g. dou-kwai and hung-jo, they will make the diease even worse.

Up till now, no one knows why SLE would appear, the only suspect is female hormones, so for those things which will affect female hormones, all SLE patients should be careful, e.g. the chinese herbs which said is good for females, and pregnancy.

However, please ask your friend not to worry too much, I have delivered 2 girls, one in last year and the other in this year, I am fine. So, as long as she is under good treatment by the hospital and keep herself emotionally healthy, she will be fine and healthy. :wink:


民房

積分: 22


7#
發表於 05-11-11 00:16 |只看該作者

Re: 紅班狼瘡

Thank you very much for the advice from all of you. I will inform these to my friend.

Cheers !


洋房

積分: 73


8#
發表於 05-11-11 12:31 |只看該作者

Re: 紅班狼瘡

台灣有研究說冬蟲草可醫紅班狼瘡。有冇人試過?


瑪瑙宮

積分: 131846

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9#
發表於 05-11-11 17:55 |只看該作者

Re: 紅班狼瘡

曾經睇過書話用斷食法可以治瘉紅斑狼瘡?-( ; 另外毛舜君以前都好似有呢個症, 之後佢飲左某一牌子的紅梅汁好番晒 ?-(

以上兩個實際就唔知得唔得~

不過我亞姨都患有此症, 但都要keep住食藥囉.

呢個症好似係人體的免疫系統失調引致, 我唸最緊要係患者要成日保持心境開朗, 個人就會容易D控制個病情


複式洋房

積分: 360


10#
發表於 05-11-14 12:25 |只看該作者

Re: 紅班狼瘡

i have SLE, other than chinese herbs, below foods will make my diease worse and rashes come out:
red-bean & cherry.
However, my doctor said, it varies from one person to another, some SLE patents eat red bean and cherry is fine.


洋房

積分: 73


11#
發表於 05-11-14 22:46 |只看該作者

Re: 紅班狼瘡

KP128,

Just want to clarify :-
chinese herbs will make your disease worse ?
OR chinese herbs WILL NOT make your disease worse ?

Thank you very much for your advice.


複式洋房

積分: 360


12#
發表於 05-11-16 12:47 |只看該作者

Re: 紅班狼瘡

Hi Susan@soho,

Chinese herbs like "dou-qui" and "hung-jo" will worsen SLE.

I tried that long long time ago before, and my rashes appeared seriously and all the joints felt pain.

:-(

My doctor said, chinese herbs with "wong-sic-so" will worsen SLE, "Dou-qui" is one of that.


洋房

積分: 73


13#
發表於 05-11-16 22:35 |只看該作者

Re: 紅班狼瘡

KP128,

Thanks so much for your advice !

Susan

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