When i was in the hosp, a mother with his son came to visit us to encourage our crying mommies.. his son was a 25 wker and had a grade 3 bleed n had an operation. He is now 5 yrs old and his mother said his size and development is normal. He was playing his NSD when I saw him.
I also met a mommy and her daughter is a 24 wker and had a grade 4 bleed with operation. She is now 8 mths old (adjusted age) and her mother said she is catching up quite well. She is now 18 pounds (heavier than my son!!)
Don't be discourage!! You'll expect their recovery is like a roller-coaster ride. However, these babies are strong warriors and their development is really unpredictable. +oil+oil!!
My baby also has grade 3 bleeding, but eventually resolved, but at 4 months old, he suddenly has grade one again...but dr told me not to worry. I also asked a few other doctors/neurologists, they all said it's very common for prem babies to have brain bleeding.
I met with a friend of my friend because of this. He's over 30 years old. He was a premature baby 30 years ago, had 腦積水, had operations on his brain to drain out the fluid. Now he's completely normal, big and healthy. Graduated from one of the top schools in HK!
My other friend also told me that one of the 10A student at one of the St Pauls schools also once had 腦積水. And he was a 10A student!!
Actually, for my bb's case, it's more serious than the brain bleeding. He was found to have a very big 水囊 on his brain, size 大過一隻雞蛋. e生話佢曾經腦部缺氧所以部份腦細胞壞死, 唔再生長, 所以腦水填補個空位形成水囊, 至於對佢日後有乜影響仍然未知.
Just want to encourage all moms here. My boy is pre-mat, one of the twins who is alive and is now nearly 4. He was born in 32 weeks and stayed one month in icu before discharged. Of course we have overcame and gone through some of the medical difficulties and problems like yours. Now he is overall okay, he is going to promote to K2 in the coming Sept. Except he is always allegic in respectory system, weaker in health, the shortest in the class, guess he is also the thinnest (around 30 pounds) , in class, eat very less & slow, motor skills and social skills are a bit lag behind ...
Yes, all pre-mat moms and childrens have to walk thru/ a different and toughest road other than others, but I think this will lead us to a closer and warmer relationship.
Keep up all moms, don't give up, you are the only one that could cheer your child up. don't let him/her alone.
I'm not sure if the same case or not. The 24 wker baby girl I know also have 腦積水 n operation to put in a tube to drain out the fluid. Her mommy said she is doing great although dr said still have extra fluid in the head n just need to observe.
For my BB, he is a big head BB and the dr. also said he has too much fluid in his head, however, a senior dr. told me it is very common in preemies and it'll usually go away when his brain grows better. For now, we just observe and see if anything wrong and if he can catch up.
Anyhow, I think most preemies are a bit slow to catch up at the beginning.. we just have to be patient n spend more time to teach them. They'll surprise you suddenly in their developments!
原文章由 jor_mankiu 於 08-7-16 01:43 發表
Actually, for my bb's case, it's more serious than the brain bleeding. He was found to have a very big 水囊 on his brain, size 大過一隻雞蛋. e生話佢曾經腦部缺氧所以部份腦細胞壞死, 唔再生長, 所以腦水填 ...
One of the first thing the doc said to me after the baby was born so early was some of these preemies have very high IQ as seen in some of the genius in the world!
It is something we can all hope for at the bottom of our hearts. Wishing all BB's are healthy and smart la!!
原文章由 jor_mankiu 於 08-7-16 01:27 發表
Hi agneskk
My baby also has grade 3 bleeding, but eventually resolved, but at 4 months old, he suddenly has grade one again...but dr told me not to worry. I also asked a few other doctors/neurologist ...
agnes,
Your baby really looks very energetic!! Don't give up and be brave always! Your baby will feel that and know that!
In here we have different stage mom that could share your worries. Your story is very common to preemies. I was as worry as you when my bb was in ICU and no mood to have "1 month celebration". My baby stayed in hospital and even take an operation 小腸氣 before discharge. However all the things are overcomed by himself! He is so brave in my heart!
When doc said he may face many problems after give birth, I didn't have any feeling as I BELIEVE my baby can do the best and will 無事出院. This is my only faith to my son and alreaday become true. So agnes, your baby is also can overcome all the things, believe in him!!!!