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Baby Kingdom - 親子王國香港討論區 › 首頁 › 醫護健康 › 嬰兒醫護› 濕疹bb媽咪論壇

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樓主: tpy

濕疹bb媽咪論壇 [複製鏈接]

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GRACEbb

男爵府

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發表於 05-3-8 16:25 |只看該作者

Re:濕疹bb媽咪論壇

thank you very much!!

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tpy

大宅

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發表於 05-3-8 16:58 |只看該作者

Re: 濕疹bb媽咪論壇

有新的資料補充:-

原來ELIDEL藥廠於去年得到衛生署批准ELIDEL可用於3個月以上之濕疹患者, 直至今時今日這個"官方批准"依然有效, 但奇就奇在衛生署又在自打咀巴向外發佈非類固醇藥(即ELIDEL及PROTOPIC)應用於2歲以上的患者.

ELIDEL藥廠已去信衛生署查詢及要求澄清有關用藥指引. 當然要同政府打交道就要預左等一段長時間. 希望衛生署今次可以快D有回覆澄清就好啦.

tpy 寫道:
Joechc,

起初我都担心呢個消息, 話晒都算係香港有關醫療部門對非類固醇藥及FDA報告的正式回應, 但當我再打電話問過政府醫院及私家醫生的意見時, 先發覺佢地好似無當做一回事, 即係非類固醇藥照用. ELIDEL 仍用於3個月以上的BB. 而瑪麗醫院同ELIDEL廠合作做個ELIDEL用藥效果研究仍然繼續進行, 無因為衛生署的最新用藥指引而停止, 我其實都好唔明, 乜醫生, 尤其是政府, 唔係會跟隨衛生署的最新用藥指引嗎? 難道這個"用藥指引"只是指引而已, 毫無約束力, 又或者只是衛生署怕被人責難而發出這樣的用藥指引?! ?-( ?-(

姑勿論是什麼原因, 既然政府及私家醫生咁專業的人都認為OK可繼續用藥, 作為患者媽咪的我們亦只有接受眼前的選擇, 用類固醇或非類固醇, 當然我的選擇是尊重醫生的診斷, 但我而家不會那麼輕易同BB搽藥膏了, 若BB皮膚上只有少許紅點, (以前會即刻用藥以免濕疹蔓延)現在只會多搽CREAM及用金銀花+土茯苓水洗身, 睇下有否幫助, 紅點會否減退, 若濕疹情況無好轉, 當然會搽番藥膏.

平日會一星期飲一次至兩次開奶茶, 又煲多D去濕湯水, 希望這種方法可減少濕疹番發及用藥次數. 我而家重有上次醫生比我的ELIDEL, 所以我會用ELIDEL先, 除非用完. 呢個月尾我會同仔仔去睇政府皮膚專科(等左3個多月啦)到時我諗會同個醫生傾下用藥的問題.

有關濕疹資料可參考以下:- 關於曾經在bk網上發表過的濕疹資料一覽表

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Garland

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發表於 05-3-8 17:36 |只看該作者

Re: 濕疹bb媽咪論壇

Hi all momies,

Eczema is still bothering my son, me and my husband a lot. I am particularly sad about the news on Elidel. I have used Elidel since baby was 2.5 months old. He is now 9.5 months. I have stopped using it now until further clarification. But my son's eczema has not improved at all. It comes back on his face, necks, legs, joints all the time. After I have used steroid for 2-3 days, his symtoms will get a bit better but they will return in a few days (I can guarantee). As you know, steroid will cause thining of the skin. I am not sure if my baby's skin has started to thin or not, but I can see some veins on his face! :cry:
I know that TCY and some others have suggested taht we use steroid a wk after the red spots are gone. But frankly I have not tried this, because I can't take the risk- I need to minimise the steroid on my baby. Help me! I think I may go crazy!

Garland

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Garland

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發表於 05-3-8 18:02 |只看該作者

Re: 濕疹bb媽咪論壇

I am now using Omneo milk power. Can I add some goat milk powder? Which brand of goat milk powder should I use and where to buy?

Thanks.

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hellokitty377

別墅

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發表於 05-3-8 18:25 |只看該作者

Re: 濕疹bb媽咪論壇

我覺得衛生處唔會白紙黑字去違反藥盒內的說明書指示(和fda警告)，如發生問題，佢地一定唔會屘呢隻穫

其實類固醇或非類固醇只要依照明書指示，唔好濫用，問題應該不大

tpy 寫道:

有新的資料補充:-

原來ELIDEL藥廠於去年得到衛生署批准ELIDEL可用於3個月以上之濕疹患者, 直至今時今日這個"官方批准"依然有效, 但奇就奇在衛生署又在自打咀巴向外發佈非類固醇藥(即ELIDEL及PROTOPIC)應用於2歲以上的患者.

ELIDEL藥廠已去信衛生署查詢及要求澄清有關用藥指引. 當然要同政府打交道就要預左等一段長時間. 希望衛生署今次可以快D有回覆澄清就好啦.

[/quote]

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UK-Riko

複式洋房

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發表於 05-3-8 19:50 |只看該作者

Re: 濕疹bb媽咪論壇

Hi tpy

thanks for your reply. so do you still use 'Elidel' for your son? My son is only 3 months old and I do not live in HK and I feel doctor here is not as helpful as those in HK. That's why I bought a Elidel cream for my son (from HK by my mum).

Using 類固醇藥can make 濕疹disappear but I know there is side effect of making the skin thin, that's why it seems 'Elidel' cream is better but of course I do worry about those report of FDA is true.

Is the 'Elidel' prescribed by your doctor to your son? Have you asked your doctor about what FDA says?

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tpy

大宅

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發表於 05-3-9 01:04 |只看該作者

Re: 濕疹bb媽咪論壇

UK-Riko ,

事實上FDA與香港衛生署對非類固醇藥的報告確實令我們一班濕疹BB媽咪很徬徨. 不過經多方面搜集資料及求証後(包括藥廠, 醫院, 醫生), ELIDEL及PROTOPIC仍然暫時算是"安全"的非類固醇.

仔仔是看過醫生後由他處方ELIDEL給我們, 醫生說沒有問題, 3個月以上是可以用的. FDA的報告也只是用動物做測試對象而得到有關結論, 而且所提及的29 宗個案的受害者亦非只因單單用藥而導致CANCER, 所以未能有效証實ELDEL與CANCER有直接或必然的關係.

既然醫生也這樣說, 他又是這麼的專業的醫療人士, 我又有何理由不想信他呢?! 當然他也說任何藥如被濫用,只會有百害而無一利, 若跟從醫生的處方指示, 是不會有問題的.

你是住在那個國家? 外國好像是不太認為濕疹是一大問題, 好像HOYINMA, 她住在NEW ZEALAND, 她也是幾經艱辛才能得到醫生的"認同"--hoyin的濕疹問題, 處方濕疹藥物給hoyin.

在香港, 很多私家醫生也會處方ELIDEL給濕疹患者BB用, 而且也不需要醫生紙也可在藥房買到. 但我覺得最好是看過醫生後由他處方較為適合, 因醫生會知道BB的濕疹情況及用藥的多少.

你BB的濕疹是否很嚴重? 放心, 當他大D, 濕疹情況是會有改善的, 你有否同BB搽CREAM? 或者你可以試下用金銀花+土茷苓水洗身, 用來醫濕疹都有效用架. 另外, 你亦可以煲開奶茶比BB飲, 幫佢去下體內的濕毒, 等佢大D就煲去濕湯飲, 這樣體內無積聚咁多濕氣/濕毒, 應該會對減少濕疹番發有幫助.

有關濕疹資料可參考以下:- 關於曾經在bk網上發表過的濕疹資料一覽表

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vileung

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發表於 05-3-9 09:58 |只看該作者

Re: 濕疹bb媽咪論壇

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vileung

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發表於 05-3-9 10:11 |只看該作者

Re: 濕疹bb媽咪論壇

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vileung

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發表於 05-3-9 10:17 |只看該作者

Re: 濕疹bb媽咪論壇

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ruby

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發表於 05-3-9 10:50 |只看該作者

Re: 濕疹bb媽咪論壇

各位, 你地好! 我囝囝就快3 歲了, 佢皮膚一向都好好架... 昨日學校老師突然打電話俾我, 話囝囝肚仔附近好痕, 不停叫痕同用手抓, 由於佢之前一直都無皮膚問題, 我以為只係少事, 昨晚我又夜左回家... 回家看到先知.. 囝囝身上長左好多似濕疹既紅斑, 果陣醫生已 close, 於是上呢個topic睇 , 之後即刻去買左 aqueous cream.. 不過牌子叫 amerian.. .. adams 果隻無貨呀....今朝囝囝仲有叫痕, d 斑就較深紅左, 似結焦咁... 本來諗住今晚同囝囝看醫生, 點知今日醫生休息.. 唉....

有經驗既媽咪, 我係咪應該同囝囝去睇醫生呀? d 疹要幾多日先退架??? thanks

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Elastigirl

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發表於 05-3-9 11:14 |只看該作者

Re: 濕疹bb媽咪論壇

That's interesting.

I have a chat with one of my friend (who is a practising pharmacist in hospital), he told me that "tacrolimus" has been on the market over 8 years for solid organ transplant patient (e.g. liver or kidney) but the trade name for that product is Prograf, not Protopic. He told me that Prograf is an oral capsule, the daily dosage for transplant patient is 5 to 10mg per day. The blood level of transplant patient is 5-10 nanogram (nano is 1/1000 of mg). He got the information from Fujisawa that Protopic is nearly undetectable in blood, so he is absolutely confident in these non-steroid product. In additional, he mentioned, if there should be any side effects on Tacrolimus, all of them should be refected on transplant patient (they take the capsule everyday!).

So I also agree with his argumentation, Protopic should be safe for patient. I'll continue to use Protopic for my daughters.

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apapa

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發表於 05-3-9 11:19 |只看該作者

Re: 濕疹bb媽咪論壇

各位媽咪:
已經唔只一個人話比我知 "雙妹嚜雪花膏" 可改善我囡囡D濕疹情況 (因為佢一唔查類固醇就立即惡化), 而且最近天氣凍就更加嚴重。但我聽人講其實 "雙妹嚜" 都含類固醇, 請問有無人知係唔係真呢? 唔該!

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hellokitty377

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發表於 05-3-9 12:33 |只看該作者

Re: 濕疹bb媽咪論壇

We should always be very careful in using new medicine for very small babies because we do not know what will be the effect of the medicine 10-20 years down the line. I am pretty sure the test for Protopic level in blood was not done on babies under 2 years old. Small babies' skin is very thin, how can you be sure about the skin absorption in such young babies?

And there is also the worry about skin cancer. That's why the manufacturer tells the patient not to expose to sunlight while using the cream.

Don't forget in smoking, cancers develop 20-30 years later. You konw in the 50's and 60's the tobacco comapnies were telling smokers that smoking could keep them young and beautiful. Now you know what happened to all those smokers. All the tobacco Company needed to do was to pay out money for compensation but money couldnot fully compensate for the pain and suffering of the smokers!

Elastigirl 寫道:
That's interesting.

I have a chat with one of my friend (who is a practising pharmacist in hospital), he told me that "tacrolimus" has been on the market over 8 years for solid organ transplant patient (e.g. liver or kidney) but the trade name for that product is Prograf, not Protopic. He told me that Prograf is an oral capsule, the daily dosage for transplant patient is 5 to 10mg per day. The blood level of transplant patient is 5-10 nanogram (nano is 1/1000 of mg). He got the information from Fujisawa that Protopic is nearly undetectable in blood, so he is absolutely confident in these non-steroid product. In additional, he mentioned, if there should be any side effects on Tacrolimus, all of them should be refected on transplant patient (they take the capsule everyday!).

So I also agree with his argumentation, Protopic should be safe for patient. I'll continue to use Protopic for my daughters.

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Garland

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發表於 05-3-9 12:54 |只看該作者

Re: 濕疹bb媽咪論壇

Hi Vileung,

Thanks. Now I wash the curtains very regularly. Normally I will take them out for washing. It is not very expensive (about HK$70 every time). Perhaps I should buy a steam cleaner but I think it is quite expensive at OSIM. Now, during my leisure time, I will think about what I can do to strengthen baby's skin.

Has anyone of you added goat milk powder to formula? Can you suggest any brand that I can use?
Thanks.

Garland

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yiyin

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發表於 05-3-9 13:03 |只看該作者

Re: 濕疹bb媽咪論壇

tpy,

Hi, I feel like giving 開奶茶 to my bb too, but there's 麥芽 in it, she's allergic to wheat , is 麥芽 the sprout of wheat?
How's your bb lately? The rashes in my bb's body and limbs are very much under control but those in her face is quite serious. I have stopped applying medication on her rashes and try using the Jurlique cream and giving her some 健康食品. After trying the new things, her rashes 好像有很輕微好轉, got rashesbut 無出水, so I 'll continue to observe her progress closely. My son will have exam next week, so I'm really busy after he's back from school. 不過捱多一個禮拜就會輕鬆d la.

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yiyin

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發表於 05-3-9 13:10 |只看該作者

Re: 濕疹bb媽咪論壇

Garland,

I breast feed my bb so haven't tried any goat milk powder b4 but I remember some mommies mentioned the brand KARIHOME 卡洛塔妮 b4, but I think you should consult your doctor first b4 giving her the goat milk powder.

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tpy

大宅

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發表於 05-3-9 13:40 |只看該作者

Re: 濕疹bb媽咪論壇

ruby,

我覺得未必是濕疹, 若你囝囝只是皮膚上有紅斑及痕, 可能是皮膚敏感, 或者他在學校接觸了一些致敏原(如花粉, 塵埃....), 因而令其皮膚忽然出現了紅班, 輕微的很快(一或兩日內會無事, 嚴重的會有發燒的情況出現, 我以前細個時就不慎接觸了公園內的灌木花朵, 手及肚仔起左很多紅斑, 跟住就發燒入左醫院一個星期.

若你囝囝今天仍很痕及多了很多紅班, 搽CREAM的作用亦不大, 我建議你同佢睇下醫生安全D.

有關濕疹資料可參考以下:- 關於曾經在bk網上發表過的濕疹資料一覽表

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