i'm sorry to hear what happened to yr bb, i remember by the time of around 20 wks pregnancy, dr. will scan thru level II ultra sound to check all the organs are well-developed or not (including lips), cuz my bb was so naughty at that time, she used her hands to cover up her face, so i'll have to scan thru one more time to see her lips, so that's why i remember it! i know it's too late to point this out already, i just wish that u can get an operation asap and don't think anything to upset yrself, yr daughter will be all rely on you and u got another gal need to take care of, right? think positive!!! :-|
Here comes some info about the association. If you feel easy, the volunteers of the assn ( I am also one of them) can pay you a visit. They can teach you how to tacke with the feeding problem, and share their experience with you.
You can buy the special nipples and borrow the splint elbow in the assn.
Pls. be assured that YOU ARE NOT ALONE. Many other experienced parents would like to support you. Let's chin up!!!!
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You can buy the special nipples and borrow the splint elbow in the assn.
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Apart from syringe, you may need to buy these specially long nipple and borrow the splint elbow, which are needed right after the Palate Repair. Many parents are highly recommend to try them before the operation, so the BB could get used in using it. ( Rehearsal)
As Babies with Cleft Palate have no seperation between month and nose, we will encounter feeding difficulties. The situation will surely become better and better ( solved ) after the Cleft Palate Repair.
Meanwhile, as mentioned earlier, you can buy diff. kind of specially designed nipples and bottles in the association. They orded them from other countries. Even the hospital would not provide them.
Sharing & sufficient Info. will surely reduce the sadness. Do you think so? :-P
Do you think the people around you give you enough support? Do your husband, your family members and your in-laws give you any pressure.
Anyway,we should not the one to be blamed. It's understandable that some mummies do have guity feeling and ask "why me". To my surprise, I don't have any quity feeling. I had already do my best during pregnancy.
I have no family history both in myself and my husband. (The Genetic factor is the crucial factor).
I am not the mommies in the "high-age / high risk gp".
I don't have any X-ray, drugs, malnutrition, ......etc. all those environment factors which may lead to this defect. I kept eating healthy food.......
So, I know I have tried my best lar
No parents want their babies suffered.The reason behind this define still not yet confirmed. Unknow Reason. Something just happen "BY CHANCE", .
don't blam yourself lar!
Pls. be assured that 兔唇裂顎患者經適當治療後可與常人一般投入和建設社會。
:-P :-P :-P :-P
I always try to think more positive, when I am thinking of other babies with more seious defects, like DOWN's.
Pls. be assured that 兔唇裂顎患者 will NOT have INTELLENGCE problem. They may only have partial hearing and speaking problem. Yet, the middle ear operation and speech therapy will help. For those 唇裂, they have to face more other difficulties.
According to the doctors, 兔唇裂顎 is the most common but most curable defect.
You may give the association a call. I am sure those parents will help you. The membership fee is about HK$ 10 only. They don't aim at money, but wanna support each other.
ME TOO! Me too! Usually speaking, 裂顎 couldn't be detected by UltraSound. Even my BB has bilateral (i.e. Two side ) of Cleft Lip, I just found it out when he was born.
I read thru the sharings from anniversary book of the assn. Many mum had this feeling of 晴天霹靂, esp. the babies with Cleft Lip. Out of my expectation, I felt very surprise. Yet, I also felt very clam and peaceful ( sharing more with you later).
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