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洋房

積分: 87


1#
發表於 10-5-19 08:57 |只看該作者
大家媽媽...你哋好!
轉眼間阿b已經2個幾月啦, 但係由佢第一個月中開始, 發現佢腳板底下面出現第一粒紅色嘅瘡仔, 當時仲以為係胎痣, 冇點樣理到佢...但係再過多兩個星期, 越嚟越大粒, 仲要喺中間有d白色嘅好似含濃咁, 過多一兩日就擴散到腳板周圍, 共有4粒...當時就帶佢去睇醫生, 一個family doc.,一個兒科doc.再另外一個皮膚科, 都唔知係咩嚟...最後我要求驗血, 先發現呢個症狀, 前幾日連另一隻腳板底都有一粒紅色, 同之前第一粒一樣....我好怕將會令到整隻腳仔都係, 依家連大脾, 小腿都有啦, 好驚..好無助~醫生話要我去驗血, 有可能係由我傳俾佢, 我好心痛..好sorry點解會傳咗俾仔仔, 我喊咗好耐,點解會咁...醫生亦已經為仔仔check過心臟, 但未有話我知有冇問題,佢講過如果心臟冇問題, 皮膚嘅問題就通常好快無事, 大概到6個月左右就會自愈, 我依家有問題想問各位媽媽, 有冇聽聞呢d病會唔會好番? 會唔會擴散到其他部位? 依家2個月嚟都係集中腳仔...同大脾, 小腿~~未見有身上同頭上~
麻煩哂~~~


男爵府

積分: 7342


2#
發表於 10-5-20 23:34 |只看該作者
Oh ... so sorry to hear this, 上網找到資料嗎 ? 醫院有無 d 咩 info 比到你 ? 我就對呢個病無認識, 希望 bb 真係無影響到心臟啦, 你亦都唔好咁自責啦, 未必有事架麻係咪 ? 祝福 bb 早日康復 ! 你自己都要 take care 呀 !

[ 本帖最後由 大頭蝦 於 10-5-20 23:37 編輯 ]



<div><a target=_blank href=http://www.pregnology.com/pregnancy/02/14/2012><img border=0 width=450 height=185 src='http://www.pregnology.com/preggoticker2/FF00CC/330000/My%20pregnancy/02/14/2012.png' alt='Pregnancy%20ticker'></a><br><a style=font-


子爵府

積分: 10881

環保接龍勳章


3#
發表於 10-5-21 02:25 |只看該作者
Hello 琳b豬 mama,

Sorry to hear your son got neonatal lupus. But, as a mother, we all do our best for our bb, so please don't cry and blame yourself for fault, it isn't good to your body and your son can sense your sadness too.

Neonatal lupus is not permanent and SLE (systemic lupus erythematosus), so he will recover when your antibodies start disappearing from him(roughly around 6 months of age). As long as the disease doesn't affect his heart, liver or blood, it's all good! Knock on wood, if there is anything happened to him(hope not), it is also treatable with nowaday medical technology, so please don't worry too much ah.

One thing you have to be cautious, those rashes are sun light sensitive, so please avoid the exposure of sunlight.

There are lots of medical websites containing info about neonatal lupus. You can search it online while you have time.


別墅

積分: 924


4#
發表於 10-5-21 16:27 |只看該作者
唔好太難過!你要be positive!因為BB需要你!

大至上都係喺網度睇嘅差不多,如果係限於皮膚感染,6至9個月會好。最驚係影響到心臟,肝臟,或者導致血有異常。盡量配合醫生,做定期檢查。

祝福你同你嘅寶寶!



洋房

積分: 87


5#
發表於 10-6-9 02:51 |只看該作者
多謝哂你哋咁多位呀~~~我阿b上星期已經去咗照心臟, 一切正常呀...好開心~~~ 而且阿b一邊檢查, 一邊同醫生笑...happy baby~ 我依家咩都放心哂, 至於自己個報告仲未出, 不過已經唔重要~! 就算真係有事, 都會學你哋話頭, 有藥醫....最緊要小小b冇事, 咩辛苦都冇所謂~~~~ 多謝哂你哋~~!!!
原帖由 大頭蝦 於 10-5-20 23:34 發表
Oh ... so sorry to hear this, 上網找到資料嗎 ? 醫院有無 d 咩 info 比到你 ? 我就對呢個病無認識, 希望 bb 真係無影響到心臟啦, 你亦都唔好咁自責啦, 未必有事架麻係咪 ? 祝福 bb 早日康復 ! 你自己都要 take car ...

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