I fully understand how you feel. My girl is also suffering from a kind of chronic illness arising from malfunctioning of immune system. It's life-term disease with no remedy. I've tried to consult many famous doctors but the answer was still the same. Now follow up at hospital thrice a year. If something wrong, she needs go to A&E immediately.
When I first knew her illness a few years ago, we couldn't accept. I cried for many times. Up till now, I still can't really accept his cruel fact. Why my girl is so unlucky? Once, I asked the doctor if transplantation of my organ to her could help. Doctor replied it couldn't as the problem was from immune system. It can harm the new organ too.
However, after coming across many hospital experience, I know that it is fact and it is life. I have to accept and face it. What we have to do is try to seek the best treatment to her. Listen to medical officer's expert advice.
I don't know and can't expect what will happen in my girl's life. Maybe magic will be there some days. Keep on fighting and add oil.